Subjective quality of life of informal caregivers aged 50–69 in Poland

Main Article Content

Anita Abramowska-Kmon
Magdalena Maciejasz


Providing informal care to adults, especially elderly people, may affect many aspects of caregivers’ life, such as: physical and mental health, financial situation, social contacts, etc. Supporting dependent seniors is associated to a higher level of stress, burden and depression as well as higher mortality. The main purpose of this paper is to analyse the relationship between caregiving for adults and the subjective quality of life among Poles aged 50–69. We took into account not only the fact of providing care to adult people, but also its beginning, continuation and ending between waves. We assumed that subjective quality of life may be expressed by two variables: one describing life satisfaction, and the second one – loneliness. We used the panel subsample from the Generation and Gender Surveys (GGS) carried out in Poland in 2010/2011 and in 2014. We found a negative effect of stopping caregiving between waves on wellbeing of women-carers, which may be related to the loss of a close person. Moreover, providing care for a longer period of time increases loneliness, which confirms that providing support to others may lead to isolation and smaller social networks.

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How to Cite
Abramowska-Kmon, A., & Maciejasz, M. (2018). Subjective quality of life of informal caregivers aged 50–69 in Poland. Studia Demograficzne, (2(174), pp. 37-65.
Original research papers & review papers


[1] Acton, G. J., 2002, Health-Promoting Self-Care in Family Caregivers, “Western Journal of Nursing Research”, no. 24 (1), 73–86.
[2] Adams, K. B., 2008, Specific effects of caring for a spouse with dementia: Differences in depressive symptoms between caregiver and non-caregiver spouses, “International Psychogeriatrics”, no. 20, 508–520.
[3] Ampalam, P., Gunturu, S., Padma, V., 2012, A comparative study of caregiver burden in psychiatric illness and chronic medical illness, “Indian J Psychiatry”, no. 54 (3), 239–243.
[4] Awad, A. G., Voruganti, L. N., 2008, The burden of schizophrenia on caregivers: a review, “Pharmacoeconomics”, no. 26 (2), 149–62.
[5] Baranowska, A., 2010, Family formation and subjective well-being. A literature overview, “Studia Demograficzne”, no. 1–2 (157–158), 103–127.
[6] Biegel, D. E., Song, L., Chakravarthy, V., 1994, Predictors of Caregiver Burden Among Support Group Members of Persons with Chronic Mental Illness, [in:] E. Kahana, D. E. Biegel,
[7] M. Wykle (Eds.), Family Caregiving Across the Lifespan, Thousand Oaks: Sage Publications.
[8] Bień, B. (Ed.), 2006, Family caregiving for the elderly in Poland, Białystok: Wydawnictwo Uniwersyteckie Transhumana.
[9] Broese van Groenou, M. I., de Boer, A., Iedema, J., 2013, Positive and negative evaluation of caregiving among three different types of informal care relationships, “European Journal of Ageing”, no. 10 (4), 301–311.
[10] Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Vilalta-Franch, J., Lopez-Pousa, S., 2010, Quality of Life of Patients with Alzheimer’s Disease: Differential Perceptions between Spouse and Adult Child Caregivers, “Dementia and Geriatric Cognitive Disorders”, no. 29 (2), 97–108.
[11] Connel, C. M., Janevic, M. R., Gallant, M. P., 2001, The Costs of Caring: Impact of Dementia on Family Caregivers, “Journal of Geriatric Psychiatry and Neurology”, no. 14 (4),179–87.
[12] Connell, P. J., 2003. A phenomenological study of the lived experiences of adult caregiving daughters and their elderly mothers, Doctoral dissertation, University of Florida.
[13] Czekanowski, P., 2002, Rodzina w życiu osob starszych i osoby starsze w rodzinie [Family in life of older people and older people in family], [in]: B. Synak (Ed.), Polska Starość, Gdańsk: Wydawnictwo Uniwersytetu Gdańskiego.
[14] Czekanowski, P., 2006, Family carers of elderly people, [in:] B. Bień (Ed.), Family caregiving for the elderly in Poland, Białystok: Wydawnictwo Uniwersyteckie Transhumana.
[15] De Jong Gierveld, J., 2006, A 6‑Item Scale for Overall, Emotional, and Social Loneliness. Confirmatory Tests on Survey Data, “Research on Aging”, no. 28 (5), 582–598.
[16] De Jong-Gierveld, J., Van Tilburg, T., 1999, Manual of the Loneliness Scale, 1–26, retrieved from: Deeken, J., Taylor, K. L., Mangan, P., Yabroff, K. R., Ingham, J. M., 2003, Care for the Caregivers: A Review of Self-Report Instruments Developed to Measure the Burden, Needs, and Quality of Life of Informal Caregivers, “Journal of Pain and Symptom Management”, no. 26 (4), 922–53.
[17] DeRigne, L., Ferrante, S., 2012, The sandwich generation: a review of the literature, “Florida Public Health Review”, no. 9, 95–104.
[18] Diener, E., Emmons, R. A., Larsen, R. J., Griffin, S., 1985, The Satisfaction with Life Scale, “Journal of Personality Assessment”, no. 49 (1).
[19] Diener, E., Emmons, R. A., Larsen, R. J., Griffin, S., 1985, The Satisfaction with Life Scale, “Journal of Personality Assessment”, no. 49 (1), 71–75.
[20] Diener, E., Eunkook, M. S., Lucas, R. E., Smith, H. L., 1999, Subjective well-being: three decades of progress, “Psychological Bulletin”, no. 125 (2), 276–302.
[21] Diwan, S., Hougham, G. W., Sachs, G. A., 2004, Strain experienced by caregivers of dementia patients receiving palliative care: Findings from the palliative excellence in Alzheimer care efforts (PEACE) program, “Journal of Palliative Medicine”, no. 7 (6), 797–807.
[22] Doblhammer, G., Ziegler, U., 2006, Future elderly living conditions in Europe: demographic insights, [in:] G. M. Backes, V. Lasch, K. Reimann (Eds.), Gender, health and ageing: European perspectives on life course, health issues and social challenges, Wiesbaden: VS Verlag.
[23] Duggleby, W. E., Swindle, J., Peacock, S, Ghosh, S., 2011, A mixed methods study of hope, transitions, and quality of life in family caregivers of persons with Alzheimer’s disease, “BMC Geriatrics”, no. 11 (88).
[24] Fingerman, K. L., Pitzer, L. M., Chan, W., Birditt, K., Franks, M. M., Zarit, S., 2011, Who gets what and why? Help middle-aged adults provide to parents and grown children, “Journals of Gerontology – Series B Psychological Sciences and Social Sciences”, no. 66 B (1), 87–98.
[25] Flyckt, L., Fatouros-Bergman, H., Koernig, T., 2015, Determinants of subjective and objective burden of informal caregiving of patients with psychotic disorders, “The International Journal of Social Psychiatry”, no. 61 (7), 684–692.
[26] Geissler, B., Pfau-Effinger, B., 2005, Change in European care arrangements, [in]: Pfau-Effinger B., Geissler B. (Eds.), Care and social integration in European societies, Bristol: The Policy Press University of Bristol.
[27] Gilliland, M. P., Bush, H. A., 2001, Social support for family caregivers: Toward a situation-specific theory, “Journal of Theory Construction and Testing”, no. 5 (2), 53–62.
[28] Grotowska-Leder, J., 2008, Sieci społeczne seniorow mieszkających w rejonach niezurbanizowanych w perspektywie teoretycznej i empirycznej, [in:] J. T. Kowaleski, P. Szukalski (Eds.), Pomyślne starzenie się w perspektywie nauk o pracy i polityce społecznej, Łodź: Zakład Demografii i Gerontologii Społecznej UŁ.
[29] Grundy, E., Henretta, J. C., 2006, Between elderly parents and adult children: a new look at the intergenerational care provided by the “sandwich generation”, “Ageing and Society”, no. 26 (05), 707–722.
[30] Hansen, T., Slagsvold, B., 2015, Feeling the squeeze? The effects of combining work and informal caregiving on psychological well-being, “European Journal of Ageing”, no. 12, 51–60.
[31] Hermanns, M., Mastel-Smith, B., 2012, Caregiving: A qualitative concept analysis, “The Qualitative Report”, no. 17 (75), 1–18.
[32] Hoenig, J., Hamilton, M. W., 1966, The schizophrenic patient in the community and his effect on the household, “Int J Soc Psychiatry”, no. 12 (3), 165–76.
[33] Hughes, S. L., Giobbie-Hurder, A., Weaver, F. M., Kubal, J. D., Henderson, W., 1999, Relationship Between Caregiver Burden and Health-Related Quality of Life, “The Gerontologist”, no. 39 (5), 534–545.
[34] Jensen, Ch. J., Ferrari, M., Cavanaugh, J. C., 2004, Builnding on the Benefits: Assessing Satisfaction and Well-Being in Elder Care, “Ageing International”, no. 29 (1), 88–110.
[35] Kiecolt-Glaser, J. K., Glaser, R., Gravenstein, S., Malarkey, W. B., Sheridan, J., 1996, Chronic stress alters the immune response to influenza virus vaccine in older adults, “Proceedings of the National Academy of Sciences”, no. 93, 3043–3047.
[36] Kiecolt-Glaser, J. K., Marucha, P. T., Mercado, A. M., Malarkey, W. B., Glaser, R., 1995, Slowing of wound healing by psychological stress, “Lancet”, no. 346 (8984), 1194–1196.
[37] Knijn, T., Kremer, M., 1997, Gender and the caring dimension of welfare states: toward inclusive citizenship, “Social Policy”, no. 4 (3), 485–508.
[38] Kotowska, I. E., Joźwiak, J., 2011, Panelowe badanie przemian relacji między pokoleniami, w rodzinie oraz między kobietami i mężczyznami: Generacje, rodziny i płeć kulturowa, “Studia Demograficzne”, no. 159 (1), 99–106.
[39] Kramer, B. J., 1997, Gain in the Caregiving Experience: Where Are We? What Next?, “The Gerontologist”, nr 37 (2): 218–232.
[40] Kramer, B. J., Kipnis, S., 1995, Eldercare and Work-Role Conflict: Toward an Understanding of Gender Differences in Caregiver Burden, “Gerontologist”, no. 35 (3), 340–348.
[41] Kumar, C. N., Suresha, K. K., Thirthalli, J., Arunachala, U., Gangadhar, B. N., 2015, Caregiver burden is associated with disability in schizophrenia: results of a study from a rural setting of south India, “The International Journal of Social Psychiatry”, no. 61 (2), 157–163.
[42] Kunemund, H., 2006, Changing welfare states and the “sandwich generation”: increasing burden for the next generation?, “International Journal of Ageing and Later Life”, no. 1 (2), 11–29.
[43] Labra, C., Millan-Calenti, J. C., Bujan, A., Nunez-Naveira, L., Jensen, A. M., Peersen, M. C., Mojs, E., Samborski, W., Mased, A., 2015, Predictors of caregiving satisfaction in informal caregivers of people with dementia, “Archives of Gerontology and Geriatrics”, no. 60 (3), 380–388.
[44] Leopold, T., Lechner, C. M., 2015, Parents’ death and adult well-being: gender, age, and adaptation to filial bereavement, “Journal of Marriage and Family”, no. 77, 747–760.
[45] Marks, N. F., Lambert, J. D., Choi, H., 2002, Transitions to caregiving, gender, and psychological well-being: a prospective U. S. national study, “Journal of Mariage and Family”, no. 64 (3), 657–667.
[46] McCullagh, E., Brigstocke, G., Donaldson, N., Kalra, L., 2005, Determinants of Caregiving Burden and Quality of Life in Caregivers of Stroke Patients, “Stroke”, no. 36, 2181–2186.
[47] Montgomery, R. J. V., Gonyea, J. G., Hooyman, N. R., 1985, Caregiving and the Experience of Subjective and Objective Burden, “Family Relations”, no. 34 (1), “The Family and Health Care”, 19–26.
[48] Montgomery, R. J. V., Rowe, J. M., Kosloski, K., 2007, Family Caregiving, [in:] J. A. Blackburn, C. N. Dulmus (Eds.), Handbook of gereontology: evidence-based approaches to theory, practice, and policy, New Jersey: John Wiley & Sons.
[49] Moor, N., de Graaf, P. M., 2016, Temporary and Long-Term Consequences of Bereavement on Happiness, “Journal of Happiness Studies”, no. 17, 913–936.
[50] National Academies of Sciences, Engineering, and Medicine, 2016, Families caring for an aging America, Washington, DC: The National Academies Press.
[51] Nijboer, C., Triemstra, M., Sanderman, R., van den Bos, G. A. M., 1999, Determinants of caregiving experiences and mental health of partners of cancer patients, “Cancer”, no. 86 (4), 577–588.
[52] OECD, 2011, The Impact of Caring on Family Carers, [in:] Help Wanted? Providing and Paying for Long-Term Care, OECD Publishing.
[53] Pavot, W., Diener, E., 1993, Review of the Satisfaction with Life Scale, “Psychological Assessment”, no. 5 (2), 164–172.
[54] Pinquart, M., Sorensen, S., 2011, Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison, “Psychology and Aging”, no. 26 (1), 1–14.
[55] Roth, D. L., Fredman, L., Haley, W. E., 2015, Informal Caregiving and Its Impact on Health: A Reappraisal From Population-Based Studies, “Gerontologist”, no. 55 (2), 309–319.
[56] Schrank, B., Ebert-Vogel, A., Amering, M., Masel, E. K., Neubauer, M., Watzke, H., Zehetmayer, S., Schur, S., 2016, Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients, “Psychooncology”, no. 25 (7), 808–814.
[57] Schulz, R., Beach, S. R., 1999, Caregiving as a risk factor for mortality: The caregiver health-effects study, “Journal of the American Medical Association”, no. 282, 2215–2219.
[58] Schulz, R., Sherwood, P. R., 2008, Physical and Mental Health Effects of Family Caregiving, “The American Journal of Nursing”, no. 108 (9 Suppl), 23–27.
[59] Sharma, N., Chakrabarti, S., Grover, S., 2016, Gender differences in caregiving among family – caregivers of people with mental illnesses, “World J Psychiatry”, no. 6 (1), 7–17.
[60] Sikorski, C., Luppa, M., Heser, K., Ernst, A., Lange, C., Werle, J., … Riedel-Heller, S. G., 2014, The role of spousal loss in the development of depressive symptoms in the elderly — Implications for diagnostic systems, “Journal of Affective Disorders”, no. 161, 97–103.
[61] Sisk, R. J., 2000, Caregiver burden and health promotion, “International Journal of Nursing Studies”, no. 37 (1), 37–43.
[62] Spillman, B. C., Pezzin, L. E., 2000, Potential and active family caregivers: changing networks and the “sandwich generation”, “The Milbank Querterly”, no. 78 (3), 347–374.
[63] Spillman, B. C., Wolff, J., Freedman, V. A, Kasper, J. D., 2014, Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving, U. S. Department of Health and Human Services Assistant Secretary for Planning and Evaluation Office of Disability, Aging and Long-Term Care Policy.
[64] Stajduhar, K. I., Funk, L., Toye, C., Grande, G. E., Aoun, A., Todd, C. J., 2010, Part 1: Homebased family caregiving at the end of life: a comprehensive review of published quantitative research (1998–2008), “Palliative Medicine”, no. 24 (6), 573–593.
[65] Takai, M., Takahashi, M., Iwamitshu, Y., Oishi, S., Miyaoka, H., 2011, Subjective experiences of family caregivers of patients with dementia as predictive factors of quality of life, “Psychogeriatrics”, no. 11 (2), 98–104.
[66] Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Rubert, M., Ory, M. G., Gallagher-Thompson, D., 2004, Positive Aspects of Caregiving, “Research on Ageing”, no. 26 (4), 429–453.
[67] Tebb, S., 1995, An aid to empowerment: A caregiver wellbeing scale, “Health and Social Work”, no. 20 (2), 87–92.
[68] Theofilou, P., 2013, Quality of Life: Definition and Measurement, “Europe's Journal of Psychology”, no. 9 (1), 150–162.
[69] Vable, A. M., Subramanian, S. V., Rist, P. M., Glymour, M. M., 2015, Does the “widowhood effect” precede spousal bereavement? Results from a Nationally Representative Sample of Older Adults, “American Journal of Geriatric Psychiatry”, no. 23 (3), 283–292.
[70] Vaupel, J. W., von Kistowski, K. G., 2008, Living longer in an ageing Europe: a challenge for individuals and societies, “European View”, no. 7 (2), 255–263.
[71] Vellone, E., Piras, G., Venturini, G., Alvaro, R., Cohen, M. Z., 2012, Quality of Life for Caregivers of Persons With Alzheimer’s Disease Living in Sardinia, Italy, “Journal of Transcultural Nursing”, no. 23 (1), 46–55.
[72] Vitaliano, P. P., Zhang, J., Scanlan, J. M., 2003, Is Caregiving Hazardous to One’s Physical Health? A Meta-Analysis, “Psychological Bulletin”, no. 129 (6), 946–972.
[73] Wagner, M., Brandt, M., 2015, Loneliness among informal caregivers aged 50 + in Europe, [in:] A. Borsch-Supan, T. Kneip, H. Litwin, M. Myck, G. Weber (Eds.), Ageing in Europe – supporting policies for an inclusive society, Berlin/Boston: Walter de Gruyter GmbH & Co.
[74] Wojtyna, E., Popiołek, K., 2012, Character of the relationship with Alzheimer patient and the psychological costs of care, “Polish Psychological Bulletin”, no. 43 (4), 244–252.
[75] Wojtyna, E., Popiołek, K., 2015, The pain of a heart being broken: pain experience and use of analgesics by caregivers of patients with Alzheimer’s disease, “BMC Psychiatry”, no. 15 (176), 1–8.
[76] Woycicka, I., 2009, Model opieki w Polsce (The care model in Poland), [in:] I. E. Kotowska (Ed.), Strukturalne i kulturowe uwarunkowania aktywności zawodowej kobiet w Polsce, Warszawa: Wydawnictwo Scholar.